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Thursday, 4 September 2014

Any Day Now

When Julie is nine years old, it gets to be the winter. And it's the kind of winter where the darkness is all the time, and not just outside. The darkness is everywhere, all around everything, and in the spirit and the bones and the blood of things. All the sounds are dark, all the silences are dark. And it's dark inside Julie, too. And she imagines this darkness inside her and she can picture it and she can feel how big and important it is and she knows that it didn't even start off small. 

And Julie realises that this dark winter is the time she'll die. And so this is what she thinks about every day. And it doesn't go away. And Julie lies in her bed at night, in her dark room during this dark winter and, quite often, she brings her hands up to her face and her hands look frighteningly big. And Julie tells herself that this is happening because her brain is preparing for death by disconnecting from her body. And her body knows it and her brain knows it and Julie knows it. She just absolutely knows it. And she decides not to take deep breaths because she'll jinx it. So she breathes small, shallow breaths that make her lips feel fuzzy.

And Julie doesn't tell anybody apart from God.


And, during this winter, where everything all around is too dark, and where car journeys feel like a flu-dream, and the characters in tv cartoons look like they're silent-screaming from a million miles away, Julie finds that she can walk just outside of herself. And while she's doing this, she looks closely at her mother and her brother and her sister, and her teachers and her friends and her non-friends. She looks really closely, even though her body feels far away from all of their bodies. And she doesn't tell anyone that she's going to die but she wants and also doesn't want them to know.

And sometimes, during very quiet indeed times, Julie sees a picture in her own head. And in the picture, there are two things happening at once. And one half of the picture is of herself in the hospital just before the moment of her death, and the other half is of her mother at home thinking about Julie in the hospital just before the moment of her death. And these two halves of the picture flit between each other quite slowly, back and forth and back and forth and Julie feels the feelings of the picture until it's so palpable that she can't bear it anymore. So she snaps herself out of it by doing a jerky movement. But then the picture seeps into her mind again and again and again until somebody interrupts her or until the phone rings.

And Julie doesn't tell anybody, apart from God.

And, during this winter, where everything all around is too dark and her body is a cold, delicate temple of symptoms, and where all the things that happen and all the things that are said are definitely an omen, Julie sometimes walks into a room where her mother is crying. And Julie can see the bulging, grief-filled veins on her mother's head, full of stubborn, tenacious blood. And Julie stays very still and quiet and she watches and listens. And she wonders if the blood in those veins on her mother's head is travelling to her heart or away from it. And she thinks about her mother's heart, her actual, real life heart; about what it might feel like to touch that heart, about what the heart might do if Julie shouted at it, about whether or not the heart is going to be ok. And then she hears her own heart, beating in her ears, like a drum wrapped in a dirty blanket. And Julie thinks that she can hear her heart whispering to her, any day now, any day now, any day now.


And Julie remembers to not breathe deeply. Because of jinxing it.

And sometimes, at school, after a whole morning of shallow breathing and prodding at her body to check for clues and thinking about dying in hospital, Julie has to go and sit by the sink with a helper. And when this happens, Julie doesn't want to talk to the helper. So she talks to God instead. Not out loud though. And she's careful not to ask God for too much because she's been told to be careful what you wish for which means omens.


And, during this winter, where everything all around is too dark, and her thumbs are cracked and bleeding from nerves, and where visits to the doctor end in sentences like, but, Julie you really don't look like you're dying, Julie dies. Right on her own doorstep. With a cup of milk in her hand. And it's such a surprise. Even though she knew it was going to happen. She just stops breathing. Just like that. Just as she's about to knock on her own front door to be let back in after going over the road to borrow some milk from a neighbour. And after she completely stops breathing, Julie thinks, oh, it's now.

And she doesn't even think about God.

Or anything.

And then some seconds pass.

And then she collapses.

And then it hurts.

And then it's real.

And then it's terrifying.

And then the door opens.

And then, Julie has one of those moments when she feels a new feeling for the first time, even though she's died. But the feeling isn't just one thing, it's an awful amount of things. And a deep, wild sound like a bellow comes out of Julie's mouth from inside her body and the sound is terrific and frightening and has other sounds attached to it. And Julie's arms shake from the vibrations of it all and she's lifted up from the ground and carried in soft arms to a soft chair and laid down gently on her trembling back. And a cool hand is pressed to her face which is a very hot face for someone who's just died, and a pair of strong, friendly thumbs wipe away Julie's sticky tears. And then eight, careful fingers team up with the thumbs to make a pair of grown-up hands, and the hands travel down the back of Julie's little neck to her pointy shoulder blades. And the grown-up hands gently push Julie onto her side. And the sweet smelling arms that the hands belong to wrap themselves around Julie's shivering bones and start to push and pull and push and pull, slowly and without too much fuss. And a sound that says, shhhh comes out of the mouth of this human rocking chair and the slow, tired, heartbroken voice of her mother whispers into Julie's bright red ear, what are we going to do with you, hmmm?

Saturday, 1 March 2014

Peacocks

Think back

Go on

How old are you?

About eight?

Yeah, about eight

And you're ok, you are

All in all

It's probably the summer

That's why it's still light at 7pm

You've just got out of the car

And there are two peacocks in the car park

The ones with all the coloured feathers

Man ones

You're holding three bags of doughnuts

For the doghnut eating competition

(Where you have to eat a whole doughnut without licking your lips) 

At the youth club for kids in care where your mum works

You're not really supposed to be here

But your mum's boss has turned a blind eye

Because of what your mum's been through recently

Oh, look

There's Samantha

You don't know her yet

She comes to talk to you as soon as she sees you

She tells you she's 14

(Wow, you think)

And that she's been coming here for two years

And that she has Down's Syndrome

And that she's been in 12 foster homes

And that the reason she's been in so many

Is that people can't cope with her

They couldn't cope with me, says Samantha

I have aggression

What kind? You ask

Just the normal kind, she says

Samantha looks at you quite a lot

And you look back at her just as much

She asks you why you're here

And you don't know what to say

Samantha says, are you in care?

And after about five seconds

You shake your head

Samantha holds your hand

And takes you inside

And makes you a Ribena

And she says, you're really kind to me

As she passes it to you

And you win the doughnut eating competition

Even though you cheat



Now

Fast forward about 15 years

You're eating a school dinner

In a school hall

You've just performed a show for some of the kids

Oh, look

There's Amy

You don't know her yet

But she comes to talk to you as soon as she sees you

She tells you that she's 12

And that she's been at this school since September

And that there's a girl on her bus who wants to beat her up

And that she's been in about seven different foster homes

And that she's never met her dad

And that she really liked the show

You ask her what her favourite part of the show was

She says she liked the whole thing

She tells you that the reason she's been in so many foster homes

Is that people can't cope with her

They couldn't cope with me, she says

Because of aggression and anger

She tells you all about it

The words that she uses to describe herself

Are words that she's heard adults using about her

Antisocial

Hyperactive

Attention seeking

Difficulty bonding

Acting out

She tells you that she misses her mum

But that her mum had to give her up

For loads of reasons

And that she only sees her every now and again

She tells you that she's been told she'd be a good social worker

You ask her if that's what she wants to be

And she laughs in your face

And says, no way

And she pulls her tights right up to her waist

And asks you if you can come and do a show every week

She doesn't really look at you when she's speaking to you

But that's ok

You get it

Thursday, 5 December 2013

One Day at a Time

I just flipped. I can't really remember what I said, but I know it wasn't pretty.

Kate is in her late fifties. She's a cleaner and has been for the past twenty-odd years. She looks worn out, stressed and a pretty wired. Like she hasn't been sleeping or eating very much.

She talks about her job for a little while; how she's been signed off work with stress since she blew up at her line manager; how she's struggling on the £86.70 per week she receives in statutory sick pay but how the thought of going back to work makes her feel like she's going to vomit.

She talks about the problems she's had with her hips; how the new, harsher schedules at work are making it really difficult for her to do her job because of her joint pain.

And then she starts talking about her son.

He's 30. Engaged. Into football and snooker. A good lad. And dying.

He'd had this cough. He'd had it for ages. A couple of years. I kept telling him to go to the doctor. Eventually he did and he was given antibiotics but it didn't go away so he went back to get more. But his cough just got worse. He'd be coughing day and night. He'd have these terrible coughing fits that would last a good three or four minutes. Really violent. So he went back to the doctor again and insisted on a referral to a specialist. And then he got a diagnosis of this fibrosis thing, or ... I can't remember the name exactly... and he didn't tell me about it for ages.

It turns out that Kate's son is a very poorly man.

It turns out that, without a lung transplant, Kate's son won't live much longer.

It turns out that, even if he has a successful transplant, Kate's son probably won't live for more than seven years.

Kate reminisces about her son's engagement party a few months ago.

He came up to me while I was dancing and asked for a Mum hug. And he held on a bit too long, you know? And, I know it sounds silly but I knew that something was wrong straight away. You just know when it's your own kids. And he wouldn't let go of me and he wasn't even that drunk. And he just said, 'Mum, Mum, I'm really scared'. And I just held onto him. My boy.

Kate battles her way through the tears taking little gulps of air. She says that this is the first time she's really talked to anyone about all this.

She talks about her son's partner; how supportive she and her family have been. She talks about getting the coach up to the hospital in Newcastle with her son to see specialists and how lovely the doctors are there.

She talks about trying to be a strong mum for him at the appointments at the hospital. But she says she feels like she's letting him down; that she had to leave the consulting room early last time because she couldn't bear the look of concentration on her son's face when he was trying to take in what the consultant was saying to him. 

She talks about how she hasn't seen her partner since he walked out of the house last night after Kate head-butted the bathroom wall and made a hole in it after an almighty row. She says she doesn't blame him. That they love each other. That she's finding it difficult to control her anger. That she needs to be better at taking things one day at a time. 

So, who knows what will happen with this disciplinary at work. To be honest, I don't really think that's what I came here to talk about.

Kate exhales slowly. She does this a few times. She says it helps her to stop shaking.

Wednesday, 25 January 2012

Letters

She said you collapsed 
And died in her arms
She wrote letters about it

It's understandable
It's true, mainly

And when I slept in your bed
I pretended I was religious
So who am I to talk?